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Tumor Registry

In 1989, NorthMain Radiation Oncology made a commitment to develop an in-house, custom-designed Tumor Registry. The registry was designed from the start to be “outcome based,” not “incidence-based.” Data entry, quality control and maintenance are provided by a Certified Tumor Registrar.

All of our patients from January 1, 1987 are abstracted and entered into the Registry. As of August 2005 there are 22,798 patients with 23,628 tumors in the system. Monthly, quarterly and yearly reports are produced for the staff. Special projects are produced as requested by the in-house staff. Requests for data from outside the practice are routinely received, and within the constraints of patient confidentiality, are efficiently produced.

The system is designed to allow physicians, nurses or other healthcare professionals to produce reports and complex analyses rapidly, on-demand. We find that the speed and ease of use of the system encourages us to ask clinical questions that might not otherwise be asked. In fact, we have used Registry analyses to modify and improve certain treatment protocols.

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Our Tumor Registry is my “baby.” I wrote every line of its computer code myself. I’ve seen multiple registries fail for lack of interest, poor design, or over-ambitious scope of data collection. Our registry collects a minimum number of data items, but we insist that every question be answered accurately. As a result, we have total confidence in the data, and can easily analyze and compare our patient outcomes with other local, national and international groups.